8/7/13 Update
Update from Samuels mother Jen: Samuel's
procedures yesterday went very well. Without the breathing tube &
strap, we can see his whole face again! The ventilator is currently
hooked to his trache to assist his breathing. Regarding the "peg" (tube
feed @ abdomen), he is on the same food product as before. It is as
close to vegan as possible while still sustaining his nutrients &
well-being. Please do not discuss the fact that it is not "true vegan"
in front of him. Sammy had begun opening his right eye. It is weak, but
he's trying. Also, Tim, the night RN, reported that Sam was squeezing
with both hands on command!😊Have a wonderful day everyone - I know Sam
& I will!
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